 |
|
Click Here to Return to Home Page
Useful Websites About Brain Injury
Brain Injury Resource Center – a nonprofit organization with information on the brain and how injury changes brain functioning and behavior, links to brain injury resources, services, and support, resource directories, professional services, tips for coping with life after brain injury, and contacts for medical and legal advisors. The site is designed for the individual survivor, the family, and the professionals that serve them.
The Brain Injury Specialists are located in Ventura, CA. The home and community neuro-rehabilitation specialists serve people who have sustained a variety of injuries by providing speech, cognitive, physical, and occupational therapies, helping with reintegration into work and the community, and offering services in Spanish. Contact information and links to support groups are given.
The California Brain Injury Association, based in Bakersfield, CA is a non-profit membership organization providing information, referrals, links to resources, education, advocacy, and support for those affected by brain injury. Statewide events are listed, there is a discussion forum for survivors and their families, and the site has the internet's largest online traumatic brain injury bookstore. The TBI Resource Guide - in association with Amazon.com - has compiled over 200 books specializing in the field of neurological injury, treatment, and outcome. A person can search for books by using keywords and then order from amazon.com.
The Brain Injury Association of America provides information on policy, prevention, legalities, press releases, legislation, research, litigation strategies, and a roster of resources and events (seminars, conferences). The site has information for survivors, their families, and educators. A person can also purchase books and BIAA (brain injury awareness of America) jewelry/items. Materials are also in Spanish
Coping with Behavior Problems After Brain Injury.
This site promotes the Traumatic Brain Injury Survivor Guide, written by Dr. Glen Johnson, Clinical Neuropsychologist, Clinical Director of the Neuro-Recovery Head Injury Program in Traverse City, Mi. The site also contains information on head injury and how to cope with the after effects.
The Traumatic Brain Injury National Resource Center provides relevant, practical information for professionals, persons with brain injury, and family members. The NRCTBI is housed at Virginia Commonwealth University’s Medical College of Virginia Campus and is a major sponsor of the annual conference for people with brain injury and the Caregiver’s Conference, both held in Williamsburg, VA. There is a “chat with Pat” section and links to resources.
The Community Care Licensing Division of the State of California falls within the Department of Social Services. This site enables you to search for a licensed facility.
Books
Following is a list of books recommended by BIC members and their families:
_______________
Where is the Mango Princess? A Journey Back from Brain Injury
by Cathy Crimmins Knopf Memoir ISBN: 0375404910
Cathy is the spouse of a TBI victim. In this book she takes the reader on the journey she and her husband and child took through the insurance bureaucracy and the multiple hospitals. Her candor is refreshing and many of her experiences mirror those of all TBI survivors and extended family.
Here’s a second review from a BIC member…I couldn't put this book down. WHERE IS THE MANGO PRINCESS? is Cathy Crimmins' memoir of her husband being hit by a speedboat and his consequent TBI (traumatic brain injury). His rehabilitation is lengthy and difficult, and the man who emerges after the injury is not the man Crimmins originally married. But her personal outlook is long on humor and she has an honest concern for getting it right --- both her story and the specifics of the problem and its treatment. It's a remarkable achievement and one that even the most hesitant reader, the one who doesn't usually like stories about medical trauma and mishap, will find enlightening, uplifting and ultimately moving._______________
End Your Story, Begin Your Life by Jim Dreaver
Jim Dreaver suffered three strokes that ended his career as a chiropractor, so he moved on to a new career as a writer and lecturer. Dreaver talks about the need to acknowledge a disability, but not to continue living that life "story." Start fresh and live from today on, finding new strengths, developing new abilities and appreciating the joys of life.
This book can be purchased online at www.EndYourStory.com
_______________
In an Instant: A Family's Journey of Love and Healing by Lee and Bob Woodruff
In January 2006, the Woodruffs seemed to have it all–a happy marriage and four beautiful children. Lee was a public relations executive and Bob had just been named co-anchor of ABC’s World News Tonight. Then, while Bob was embedded with the military in Iraq, an improvised explosive device went off near the tank he was riding in. He and his cameraman, Doug Vogt, were hit, and Bob suffered a traumatic brain injury that nearly killed him.
In an Instant is the frank and compelling account of how Bob and Lee’s lives came together, were blown apart, and then were miraculously put together again–and how they persevered, with grit but also with humor, through intense trauma and fear. The Woodruffs reveal the agonizing details of Bob’s terrible injuries and his remarkable recovery. We learn that Bob’s return home was not an end to the journey but the first step into a future they have learned not to fear but to be grateful for.
In an Instant is much more than the dual memoir of love and courage. It is an important, wise, and inspiring guide to coping with the tragedy of a brain injury–and an extraordinary drama of marriage, family, war, and nation.
________________
Over My Head by Claudia L. Osborn
A doctor who was a head injury and can explain it to Normies
_______________
The War Comes Home by Aaron Glantz
This is the first book to systematically document the U.S. government's neglect of soldiers returning from Iraq and Afghanistan, a great many of whom suffer from a brain injury from their combat. Aaron Glantz, who reported extensively from Iraq during the first three years of this war, interviewed more than one hundred recent war veterans, and here he intersperses their haunting first-person accounts with groundbreaking investigative journalism. This timely book does more than provide us with a personal connection to those whose service has cost them so dearly. It compels us to confront how America treats its veterans and to consider what kind of nation deifies its soldiers and then casts them off as damaged goods.
Learn more about this book at http://www.aaronglantz.com/
______________
It's Always Too Soon to Quit by Lewis R. Timberlake
Talks about people that we all know and the things they had to overcome to come out with a terrific outcome.
________________
Holistic Self-Care for Post Traumatic Stress and Dissociative Identity by Dr. Cindee Grace
Dr. Cindee Grace (naturopath) is offering her book Holistic Self-Care for Post Traumatic Stress and Dissociative Identity free to members of the brain injured community, and is encouraging you to share copies with others. Here's a review:
Cindee Grace has written a treasure trove of healing wisdom, inventive, user-friendly technique and mind-body-spirit methodology for people wrestling with post traumatic stress and dissociative identity. An intimately written insider’s healing memoir, as well as a brainy, professionally grounded self-help manual, this book will be a godsend to scores of survivors of even the worst kinds of trauma and abuse.
-- Belleruth Naparstek, LISW author of Invisible Heroes: Survivors of Trauma and How They Heal
To read and/or download Dr. Grace's book, go to this website and scroll down to the red click the "to read" icon next to Dr. Grace's book title. Here's the website:
http://www.amyweintraub.com/resources.htm
________________
Therapeutic Fun for Head Injured Persons and Their Families
Sally Kneipp (ed) 1988, Community Skills Program, c/o Counseling and Rehabilitation, Inc., 1616 Walnut St., #800, Philadelphia, PA 19103.
____________________
Professional Series and Coping Series
HDI Publishers, PO Box 131401, Houston, TX 77219. (800) 321-7037.
________________
Head Injury Peer Support Group Training Manual
Family Caregiver Alliance (1993): San Francisco, CA.
________________
Head Injury and the Family: A Life and Living Perspective
Arthur Dell Orto and Paul Power (1994) GR Press, 6959 University Blvd., Winter Park, FL 32193. (800) 438-5911.
___________________
Awake Again
Martin Krieg (1994), WRS Publishing, available from the author: P.O. Box 3346, Santa Cruz, CA 95063. (408) 426-8830.Educational Resources
__________________
Brain Injury ADHD, LD -- What's the Difference?
By Sharon Grandinette ~ 2006
Brain injury Tip Card for Schools and other information explains the similarities and differences among students with acquired brain injuries, attention deficit, hyperactivity disorders and learning disabilities. It discusses implications for special education services and why these conditions are so often confused. Contains a summary chart with comparisons that is a great resource for parents, educators, clinicians and advocates. Here's the website:
http://www.lapublishing.com/detail.asp_Q_product_id_E_BIAD
____________________
Exceptional Educational Services, established by Sharon Grandinette, M.S., is dedicated to serving children and adolescents with special needs, specifically those with Acquired Brain Injury. After working with exceptional children for 25 years, Sharon has made a significant impact in this field, and on the lives of all of the people she has assisted.
Sharon has an extensive background in the field of Special Education in both public and non-public schools as well as in the post-acute brain injury health care field. She is an instructor at California State University Dominguez Hills in the Graduate Special Education Credential Program, is currently president of CAPHI-The California Association for Physical & Health Impairments, is on the Advisory board for We Can, Pediatric Brain Tumor Support Network and is a board member of AACBIS-the American Academy for the Certification of Brain Injury Specialists.
HelpingKidsBrains.com is a product of Sharon’s expertise regarding the needs of children who have suffered from brain injuries, brain tumors, and other types of acquired disabilities. Here is her website:
http://www.helpingkidsbrains.com/home2.html
Video
Following is a list of links to videos dealing with Brain Injury:
_____________
Choosing a Rehab Facility
http://media.legalwebmedia.com/cpr/TBI/TBI_FinneganSec1_8.15.04_DOD.wmv
Injury Effects of a Traumatic Brain Injury
http://media.legalwebmedia.com/cpr/TBI/TBI_InjuryEffects_DL_8.15.04_DOD.wmv
Diagnosing Traumatic Brain Injury
http://media.legalwebmedia.com/cpr/TBI/TBI_diagnosis_DL_8.15.04_DOD.wmv
Symptoms of TBI
http://media.legalwebmedia.com/cpr/TBI/TBI_Symptoms_DL_8.15.04_DOD.wmv
TBI: What the Family Needs to Know
http://media.legalwebmedia.com/cpr/TBI/TBI_FinneganSec3_8.15.04_DOD.wmv
The Family's Role in Helping a Survivor
http://media.legalwebmedia.com/cpr/TBI/TBI_FinneganSec2_8.15.04_DOD.wmv
Navigating the Anatomy of the Brain and its Functions
http://media.legalwebmedia.com/cpr/TBI/TBI_BrainAnatomy_DL_8.15.04_DOD.wmv
Automated Medication Dispenser
